Updates on Evan

A wonderful Wednesday.

Posted by: Myra
Date: April 29th, 2009

Although Evan spent 13 days this month in the hospital, today you would never have known it. He went to school this afternoon! What a thrill to see him in his uniform, grinning ear to ear as he was reunited with his classmates. (He did attempt to run on the playground and hurt his foot a little bit, but nothing serious.) After school was out he brought a friend home to play video games. It was so good to hear him laughing like his old self.

A special thank you to the whole St. Agnes community. Fr. Bob and Sr. Joan have continued to reach out through visits and phone calls to keep us connected to our church and school these past 10 months. The entire staff has kindly posted messages and kept their classes busy creating special projects and cards throughout the year. Individual parents and parishioners continually send us inspiring and compassionate emails and cards to let us know they are thinking and praying for us. It’s impossible to express just how much this has meant to all of us. May God bless you all.

 

May Day

Posted by: Myra
Date: April 26th, 2009

What an enjoyable weekend for all of us. Evan seems to have a renewed sense of energy and confidence since receiving the good report on Friday. He’s loved being outside, visiting with family and has even felt like experimenting with eating - by mouth! So far, eating Ramen noodles with chopsticks has been the most satisfying.

This Friday, May 1st is Evan’s 12th birthday! Please don’t worry about sending cards just simply post a happy birthday greeting to him on the Web site. He checks the site regularly. Maybe you’ve been following Evan’s story for sometime and have never posted a message, now would be a great time to let us know you’re out there. If you’re from outside Springfield, IL -- let us know where you’re from! (We’re still sticking pins in our U.S. and World maps.)

Looking ahead, the next round of chemo #35 is scheduled for Tuesday, May 5 and it’s a one night stay. They call this chemo combination VAC it consists of Vincristine, Dactinomycin and Cyclophosphamide. Evan has never had Dactinomycin, so we’re hoping all goes well with this new drug.

Have a great week!

 

Two thumbs up!

Posted by: Myra
Date: April 24th, 2009

Just back from the doctor's office. Yesterday's scans "look good." They do the CT scan of the chest because if the cancer were to spread that would be the most likely place. The CT scan was all clear (Evan did not have metastatic disease at the time of diagnosis either).

The MRI of the head still shows some abnormality in the area of the tumor, but the size of the tumor continues to shrink.

Some people are still confused and think Evan has brain cancer. He does not. Rhabdo is a cancer of the muscle tissue. His tumor is in his head (sinus area) but not in his brain. There is a difference, so I just wanted to clarify.

The radiation, chemo, and especially YOUR PRAYERS are all working together to help Evan win this battle against cancer! We have a ways to go yet, so don't let up.

With love and gratitude,
Jeff, Myra and Evan

 

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