Updates on Evan

Thumbs up.

Posted by: Myra
Date: May 29th, 2009

Evan's counts were all in good shape today. Thankfully, this particular combination of chemo (with Dactinomycin) that he's received the last two times is not nearly as toxic as Doxorubicin was to his system. Don't get me wrong, it's all awful – this just seems less awful.

We will head back to the hospital on Monday, June 1 for another overnight stay, Cycle #41.

After Monday, Evan only has ONE more in-patient treatment (probably June 22). The remaining six treatments are all outpatient.

Dare I say it, this little engine (nod to Martha!) is starting to see, in the far off distance, the light at the end of the tunnel...

 

Wednesday update.

Posted by: Myra
Date: May 27th, 2009

Evan had his blood counts checked today. It's been a week since his last round of chemo. His hemoglobin and platelets are low, but the neutrophils look good. Evan's main complaint is fatigue.

He's still battling the intestinal infection and has lost three pounds since last week. He continues to eat by mouth, so that's a positive thing.

We go back on Friday for another counts check and we'll know better then when the next round of chemo will be.

This is the last week of school for Evan's classmates. We would like to thank everyone at St. Agnes – students, teachers, staff, parents – for all of their love and support this year! It has meant so much to our family. God bless each of you. Have a safe and fun summer!

 

Saturday, feeling better.

Posted by: Myra
Date: May 23rd, 2009

Evan had a much better night and hasn't had a fever since yesterday afternoon, so they let us go home today.

He has to stick to a bland diet and drink lots of liquids, and of course, we've added another medicine to the arsenal he takes already. If it works, we're happy to comply.

Next hurdle will be dealing with the low counts from last week's chemo. Hoping it goes as smoothly as the prior round.

Thanks for checking in on Evan.

 

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